Fair distribution of newborn screening costs and benefits / Mary Ann Baily
Cost-effectiveness as a criterion for newborn screening policy decisions / Scott D. Grosse
An advocate's perspective on newborn screening policy / Jannine DeMars Cody
Newborn screening for conditions that do not meet the Wilson and Jungner criteria : the case of Duchenne muscular dystrophy / Lainie Friedman Ross
Lessons to be learned from the move toward expanded newborn screening / Ellen Wright Clayton
State newborn screening advisory committees : how programs introduce public participation into decision making / Bruce Jennings and Andrea Bonnicksen
Racial/ethnic communities and newborn screening policies / Toby Citrin and Stephen M. Modell
The role of the federal government in supporting state newborn screening programs / Michele A. Lloyd-Puryear ... [et al.]
What is the role for evidence-based decision making in expanded newborn screening? / Virginia A. Moyer ... [et al.]
Research for newborn screening : developing a national framework / Jeffrey R. Botkin
Ethical and policy issues involving research with newborn screening blood samples / Karen Maschke
Parental permission for research in newborn screening / Jeffrey R. Botkin
Population-based research within a public health service : two models for compliance with the common rule in the Massachusetts newborn screening program / Anne Marie Comeau and Donna E. Levin
Ethical and policy implications of conducting carrier testing and newborn screening for the same condition / Benjamin S. Wilfond
What can we do to shape the future of newborn screening? : conclusions and recommendations / Mary Ann Baily and Thomas H. Murray.
OBNB doesn't sell books, but you may be able to find a copy at one of these websites:
Ethics and newborn genetic screening : new technologies, new challenges. ISBN 9780801891519. Published by Johns Hopkins University Press in 2009. Publication and catalogue information, links to buy online and reader comments.
